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Columbia Missourian A fighting spirit: Missouri softball's bat girl invigorates, inspires team Columbia Missourian game against South Carolina. Ryleigh has Hurler Syndrome , a genetic disorder that affects the metabolism, according to the U.S. National Library of Medicine. Ryleigh has done the treatment since 2008, when she was 3 years old. It's almost

Endpoints News An FDA reform agenda: What would Commissioner Scott Gottlieb do in his first six months? Endpoints News But the reverse happened, as he illustrated with the regulatory history of Aldurazyme, Hurler Syndrome , or MPS 1. adaptive trial designs and better use of all the various FDA programs for accelerating approvals, from BTD to orphan drug designations

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